Saturday, December 27, 2008

What do you say to that?

I should be writing about our first Christmas here in Plano. How wonderful it was to have Triann's family here in town, how beautiful the tree was and how excited the kids were to see all that Santa had brought them. I guess I just did and will probably write more later, but the reason I started this was to give myself an outlet to chew things over with my fingers and put the thoughts bouncing in my head into print. As much for me as for anyone else, so here is what is eating me right now.

Emily turned 7 today. Last night as we were all settling in for the evening we asked if she was excited about her birthday. She said she was. When asked why, she said she was excited because when she turned 7 she would be able to walk. Most of you know, but for those new to this or to us Emily has spina bifida and is paralyzed from the waist down. She was born this way and has been in a wheelchair since she was 18 months old. Emily has said many times through the years that she will be able to walk once she is grown up. This has increased some in the last couple of years as she has watched her younger brother learn to walk, run, jump, skip etc. She doesn't understand why she as the big sister cannot do things that her little brother is doing.

When the statement came last night, that she would be able to walk since she was turning 7 it caught both of us off guard. I went in to pray with Emily as she was going to bed and found Triann in the bathroom crying by herself. I asked her what was wrong and she said it was Emily's comment. I held her for a few minutes and then she went to sleep and I went to my thinking chair (too much blues clues). I sat and I thought and I prayed and I thought and prayed some more. What is the right thing to think or say to a statement like that?

I know and believe that God can do anything and that if he wanted her to walk tonight while I was writing this, she could get up out of her bed and crawl up into my lap. I know that he tells us in the Bible that with faith the size of a mustard seed we can tell a mountain to move and it will (Matthew 17:20). But do I have that faith? Do I believe that? I know that it is true, but in my heart do I really have the faith to ask that? The answer is no and I think that is where I really am struggling right now. It honestly isn't an issue of if I believe that or not, it is if the fear of it not happening and building up all our hopes. I have always been afraid to pray for specific things. I know that God can do anything but don't think that we always know what it is that we really need so I always pray for God's will to be done, meaning this is what I would like but you do what needs to be done. So do what do I say to Emily?

I said this has come up many times and usually I tell her that it isn't anything to do with her age but that her body just won't let her do that. We have talked about the physical reasons, spinal cord is disconnected, no nerves firing down there. She knows that she can't feel anything below her belly button and that she has hurt herself more than once and not felt it. She snapped her femur earlier this year and didn't even have to be medicated when they set it.

So what would you do? Do you hit her with reality or do you give her hope even if you don't think there is hope?

I don't have a wise answer for you because I don't know the right answer or even what I think I should do. I guess until I come up with something else I will keep telling her the same thing and hope that my lack of faith or confidence doesn't cheat her out of something amazing.

Eric

2 comments:

Kim and Kris said...

Jesus tells us to have faith like a child, and that if anyone leads a child astray, it is better that a stone be tied around his neck and thrown into the sea...so I say, let her believe, but teach her to understand that it is God who decides what is best for us. And, her healing may have to wait till heaven, and it may not. Her inability to walk could be one thing that God will use to reach others for him, or her healing could be used that way too...we just have such limited vision.

Christina Lane | The Sometimes Crafter said...

Thing arn't always meant to be taken so literally. "Moving the mountain" isn't always about physcially moving the mountain. Emily may not be able to physically get out of her chair and walk to you this moment, but one day there may be advances in medicine that will allow her to "walk". While it may be importnant to talk with her about why that isn't necessarily going to happen at age 7 (or 8, or 9, or....), it is good to talk with her about the possibility of that happening one day. She is allowed to have hope (and faith), even in something that seems too far of a reach to us now. I am the same way, I don't like to ask for specifics, just that I have the ability to accept the decision that is out of my control and the understanding that things will work out.